Sunday, September 15, 2013

Juvenile Dermatomyositis

My  22-year old daughter in law has a chronic auto-immune disorder, juvenile dermatomyositis.  Amanda's started in middle school after getting a  required vaccine.  She has not had a remission that I am aware of.
I've been researching and the link I gave above pretty much sums it up.   Here are some other links:
NINDS
Cure JM Foundation
Life In The Autoimmune Lane blog
Online Study Get paid for it having dermatomyositis.
The Spoon Theory - what it's like to have a chronic illness
Myositis is a blanket name for a bunch of neuro muscular disorders
You can just type in dermatomyositis in FaceBook and come up with a few groups.

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